He survived the initial 13 hours of life-saving operations and was placed in TLC. I was thankful that my co-workers thought of bringing me a paper notebook with a pen, for I was catapulted back into when I studied medical terminology, only this time, my son was the case study. Radiology exams confirmed that Josh had fractured 86 bones more than Evel Knievel at any one time and suffered a torn aorta, loss of right kidney function, and severe nerve damage.
He was packed in a temperature management system for the first two weeks, consisting of an ice blanket and ice packs. This helped reduce his neurostorming symptoms: increased heart rate, increased blood pressure, tremors, fevers, increased Intra Cranial Pressure ICP and increased Cerebral Spinal Fluid CSF which was drained off occasionally to maintain safe levels.
This creates a striking visual effect: severe erythema redness and hyperhidrosis extreme sweating on only the left half of his forehead, face, shoulder, neck, and chest. Meanwhile, the right side of his body had no visual changes of color or sweat.
I felt significant dreadfulness watching Josh as he neurostormed during the first few months. Allison and I would take turns constantly soaking up his drenched forehead and chest, while his friends brought in portable mini fans that we attached to his bed to help cool him.
As time went on, I tried to put my mind into a learning experience rather than a fearful one, for this was something Josh was going to be dealing with for a long time, and we needed to learn about it to help him. As our knowledge grew, it became a great source of power that has helped Josh on the road throughout his journey. Please remember, we are not able to give medical or legal advice.
If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only. My 21 year old son is currently recovering from a very similar situation. He started at a 2 on the Glascow scale and also experienced intense neurostorming. These individuals generally are at a low level of neurological activity with minimal alertness, minimal awareness, and reflexive motor response to stimulation, and the storming can take a seemingly peaceful individual into a state of chaos.
Diagnosis is commonly made solely on clinical assessment, and treatment is aimed at controlling the duration and severity of the symptoms and preventing additional brain injury. The ramifications cause a ripple effect that alters everyone involved. Trying to learn about and accept the situation assists in the coping process.
As a parent who practically lived in the hospital for three months, I feel it is important to share my knowledge and experience with other caretakers. The shock accompanying horrific news tends to outweigh reason.
Understandably, we do not always absorb the information doctors are attempting to relay. Days after this kind of trauma go by in a blur of shock and sleeplessness. Take notes. Not only should you detail the names of each doctor, but jot down the basics — what type of doctor, possible care plan, as well as upcoming and future surgeries.
There will be thousands of questions randomly going through your mind. Some hospitals provide white boards in the room, which is an excellent way to post inquiries to health care professionals on the off chance you step away from the room. At times, there may be three different answers to just one question and those three perspectives are all important in determining the best future medical plans for your loved one.
Jotting down potential options to make it easier. Keeping lists of current medications is very important, but keeping track of newly introduced meds is equally critical.
Medical professionals are trained to look for adverse reactions to medicine; however, the caretaker has constant face-time with the patient and may be quicker to notice complications. Get instant access to our TBI recovery exercise ebook with 25 pages of exercises by signing up below! Each exercise features pictures of a licensed therapist to help guide you.
The lockdown in June was a great challenge for him as his caregivers stopped coming, no gym workouts and no outings for a coffee. Being his mother and primary carer I feared that this was a hotbed for depression. I scoured the net and chanced upon FlintRehab. As there was a trial period it was safe for us to risk getting it across to Auckland. He enjoys working on it and now after three months can do it on his own.
His left hand helps his right hand. The FitMi video explains and shows him what to do, it gives him marks and applauds him too!!
He has to use both sides of his brain. The caregivers are OT students who returned enjoy working on it with him. In three months there motivation built up in him with a drive to use his right hand. There is definitely a slight improvement in his right hand. This encourages him as well as the caregivers to try harder. His overall mood is upbeat. Neurological Recovery Blog. Support Group on Facebook.
FitMi Full-Body Therapy. MusicGlove Hand Therapy. Sign up to receive a free PDF ebook with recovery exercises for stroke, traumatic brain injury, or spinal cord injury below:. Skip to content No products in the cart. Last updated on October 6,
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